According to The Huffington Post a ‘spoonie can refer to any individual who suffers from a chronic illness. The term originated from a post written by Christine Miserandino entitled The Spoon Theory‘. In 2010, Christine Miserandino was a college student living with lupus. She and her best friend were sitting in a diner, chatting about life in general. When Christine pulled out medicine to take with her food, her friend asked what it was like to have lupus. Christine was shocked not only because she asked the random question, but also because she assumed she knew all there was to know about Lupus. She went to doctors with her, she saw her walk with a cane, and throw up in the bathroom. She had seen her cry in pain, and so she wondered what else was there to know?”
Miserandino hypothetically measures her ability to carry out daily tasks by counting spoons, to show that while sometimes she has an abundance of spoons, other times she comes up short. (If you haven’t read the post yet, it is definitely worth checking out.) Since that post, “spoonie” and “#spoonie” have been used on sites like tumblr, to connect people living with chronic illnesses.
Another site who writes about The Spoon Theory by Christine Miserandino of But You Don’t Look Sick, is ‘Counting my Spoons‘. by Julie Ryan, who is herself a Spoonie. She also runs another site ‘Chronic Illness Bloggers ‘ which I am a member of and which is a network for those who blog about chronic illness. All chronic illnesses are welcome there and they have a supportive community for bloggers, where anyone can share ideas, blogging tips and brand collaborations.
You can also go onto Twitter and write #Spoonie in the search section where you will find lots of posts on chronic pain sufferers and links to other organisations. Of course that’s not the only media to have Spoonie groups, you can also find a number on Facebook and Pinterest as well as many more media sites. Feel free to add a link to your ‘Spoonie’ blog or website in the comments section of this post.