#health, #Spoonie, Back Pain, CHRONIC PAIN, FIBROMYALGIA, Fibromyalgia Awareness Day, HEALTH, low back pain, M.E.


Help us to promote Fibromyalgia Awareness Day on 12th May 2018 in any way you can. Some Fibro groups have created unique ways to help promote awareness.

To mark Fibro Awareness Day the Flare Group meet at the Blackpool Tower for their annual Global Light up the Night where the Tower will once again light up in purple with a blue heart to represent both FM and Me.If you would like to get involved, visit or donate to any of their events or fundraisers please contact them by clicking here, you can also message them through their social network pages and groups.blackpool


Fibro and Chronic Pain Support Group promote the awareness day on a Facebook page which is an online event only so you can attend from the comfort of your home or work! Fibromyalgia (FMS) & ME/CFS Awareness Day for May 12th of each year, but will be recognized by us all year round. It isn’t just one day that we want awareness, it’s every day because every day we deal with chronic pain. We attend at the comfort of our home and work. We will be able to share together support, love, care and information. Fibro and Chronic Pain Support – Page Link: https://www.facebook.com/FibroandChronicPainSupport – International May 12th Light Up the Night Challenge

Fibrodaze also has the above and others on their list of Fibro Awareness online events

Fibromyalgia Action UK have an events page with a list of awareness events and have a Campaign Pack to help you organise your own event. It’s still not to late to sort one out. Their campaign pack is designed to help you share the message among your community about fibromyalgia and the significant impact that the condition has on their lives of those living with the condition, as well as family and friends of those affected. There is a range of materials available to download and print from the Fibromyalgia Action UK website, that you can use to promote your activity or to encourage people to talk about fibromyalgia.

May 12th International Awareness Day – Since 1992, they have been raising awareness for May 12th!  Each year landmarks and private homes around the world are lit with our colours on  May 12th. May 12th has been designated as International Awareness Day for Chronic Immunological and Neurological Diseases (CIND) since 1992. The CIND illnesses include Myalgic Encephalomyelitis (ME), Chronic Fatigue Syndrome (CFS), Fibromyalgia (FM), Gulf War Syndrome (GWS) and Multiple Chemical Sensitivity (MCS).May 12th was chosen as it is the birthday of Florence Nightingale. She was believed to have suffered from ME/CFS. In 2010, a write-up was done to give a history of May 12th. Their Facebook page has events and lots of info on Fibro and other conditions.

National Fibromyalgia and Chronic Pain Association are based in America and also support May 12th’s awareness day and have a map with links to events happening in the US.

Together Walks is another US charity that has been set up to raise funds for research and help people connect for May 12th Fibromyalgia Awareness Day.*  More than 700 live champions and thousands of online champions have joined Together Walks. Click here to register for live and virtual 2018 Together Walks as well as to create and join walk teams.  The Hub is an all-new website designed to help people create a fundraising event for fibromyalgia research and then promote it.

A few other events in the UK include –

Fibro Warriors Fibromyalgia Awareness Day Meal on Saturday 12th May, in Tameside.

Fibromyalgia Awareness is having a May Ball at Friern Manor on Saturday 12th May, in Brentwood.

Fibro PaIN is hosting a production of Invisible – One Woman’s Fight with Fibromyalgia -a play by CLM Productions and starring Charlie Maxx & Angie Walker about one woman’s fibromyalgia journey, on Saturday 12th May, in Renfrewshire.

If you have an event that has not been mentioned in this post please feel free to add to the comment section.


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