World Fibromyalgia Awareness Day May 12th and Fibromyalgia Awareness Month May 1st-30th – May is the month we all come together to educate and raise awareness about Fibromyalgia with friends and family, at work, and in our neighbourhoods.
Take part to share the facts, and make a difference for all those impacted by Fibromyalgia, #SupportFibro. Fibromyalgia Awareness Day is May 12th and World Lupus Day is May 10th. Get ready to turn the month of May purple!
Fibromyalgia has many symptoms that tend to vary from person to person, and the NHS describe some of the awful symptoms.
There may be periods when your symptoms get better or worse, depending on factors such as:
- your stress levels
- changes in the weather
- how physically active you are
If you think you have fibromyalgia, visit your GP.
Treatment is available to ease some of the symptoms, although it’s unlikely they’ll ever disappear completely.
The main symptoms of fibromyalgia are outlined below.
If you have fibromyalgia, one of the main symptoms is likely to be widespread pain.
This may be felt throughout your body, but could be worse in particular areas, such as your back or neck.
The pain is likely to be continuous, although it may be better or more severe at different times.
The pain could feel like:
- an ache
- a burning sensation
- a sharp, stabbing pain
Fibromyalgia can make you extremely sensitive to pain all over your body, and you may find that even the slightest touch is painful.
If you hurt yourself, such as stubbing your toe, the pain may continue for much longer than it normally would.
You may hear the condition described in the following medical terms:
- hyperalgesia – when you’re extremely sensitive to pain
- allodynia – when you feel pain from something that should not be painful at all, such as a very light touch
You may also be sensitive to things like smoke, certain foods and bright lights.
Being exposed to something you’re sensitive to can cause your other fibromyalgia symptoms to flare up.
Fibromyalgia can make you feel stiff. The stiffness may be most severe when you have been in the same position for a long period of time – for example, when you first wake up in the morning.
It can also cause your muscles to spasm, which is when they contract (squeeze) tightly and painfully.
Fibromyalgia can cause extreme tiredness (fatigue). This can range from a mild tired feeling to the exhaustion often experienced during a flu-like illness.
Severe fatigue may come on suddenly and can drain you of all your energy. If this happens, you may feel too tired to do anything at all.
Poor sleep quality
Fibromyalgia can affect your sleep. You may often wake up tired, even when you have had plenty of sleep.
This is because the condition can sometimes prevent you sleeping deeply enough to refresh you properly.
You may hear this described as non-restorative sleep.
Cognitive problems (‘fibro-fog’)
Cognitive problems are issues related to mental processes, such as thinking and learning.
If you have fibromyalgia, you may have:
- trouble remembering and learning new things
- problems with attention and concentration
- slowed or confused speech
If fibromyalgia has caused you to experience pain and stiffness in your neck and shoulders, you may also have frequent headaches.
These can vary from being mild headaches to severe migraines, and could also involve other symptoms, such as feeling sick.
Irritable bowel syndrome (IBS)
Some people with fibromyalgia also develop irritable bowel syndrome (IBS).
Other symptoms that people with fibromyalgia sometimes experience include:
- dizziness and clumsiness
- feeling too hot or too cold – this is because you’re not able to regulate your body temperature properly
- an overwhelming urge to move your legs (restless legs syndrome)
- tingling, numbness, prickling or burning sensations in your hands and feet (pins and needles, also known as paraesthesia)
- in women, unusually painful periods
In some cases, having the condition can lead to depression.
This is because fibromyalgia can be difficult to deal with, and low levels of certain hormones associated with the condition can make you prone to developing depression.
Depression can cause many symptoms, including:
- constantly feeling low
- feeling hopeless and helpless
- losing interest in the things you usually enjoy
If you think you may be depressed, it’s important to get help from a GP or your fibromyalgia healthcare professional, if you have been seeing one.
Here are some great tips for newly diagnosed Fibromyalgia sufferers from fellow sufferers.