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TWENTY TIPS FOR NEWLY DIAGNOSED FIBROMYALGIA SUFFERERS…

If you have been newly diagnosed with Fibromyalgia here are a few tips to help you deal with the condition.

1. Never be afraid to ask for help, be it with the shopping, cooking or cleaning. As most sufferers tend to ‘look fine’ most people do not realise the pain they are suffering inside, so if you don’t ask you won’t get help.

2. If work is leaving you exhausted and in pain, then design a flexible plan that works for you and your boss. Ask about working from home part-time, or setting your hours for earlier or later in the day so you can be more productive, during this busy time.

3. Don’t try to always put on a happy face. Your loved ones need to know what makes your symptoms worse.

4. Rest, rest and more rest, every little helps to recharge your batteries. When you feel that overwhelming urge to sleep try and get forty winks.

5. Support groups can play an important part in the lives of people with chronic illnesses. Whether in person or online, they offer a safe place to talk with others who may share your frustrations and concerns.

6. Tomorrow is another day and with Fibromyalgia tomorrow can be a more comfortable day, so try to not think negative when you are having a bad day.

7. Keep all your ‘helpful’ pain relievers on hand, be it a hot water bottle, pillow, cushion or whatever you have that helps your pain.

8. A useful purchase for going out is a lightweight portable stadium seat which you can find on Amazon.

9. Also a sciatica support cushion can be great to have in your car while travelling. I could not manage many journeys without mine. There are lots to choose from.

10.This is an Adjustable Tripod Walking Stick and seat. If, like me you cannot stand for long in a queue then this is just perfect. The Height adjustable walking stick seat is designed to provide support and comfort and provides a stable and comfortable seated position when you need a break from standing.

11. Have a very hot bath or a hot shower. When it comes to reducing pain, soaking yourself in super hot water may not be your first thought but it can actually provide significant relief. My day starts with me taking my meds then having a hot shower. I feel totally different twenty minutes later. Heat, heat and more heat helps with pain.

12. Try and stay as active as possible which is a hard thing to ask if you are in pain but staying active is a powerful way to reduce daily pain. A walk a day may keep the Doctor away. Ten minutes can make a big difference to your health and well being then increase it to 15 or 20 minutes. Your GP or physiotherapist may be able to refer you to a health professional who specialises in helping people with fibromyalgia work out an exercise plan.

13. Leave the house cleaning until you are on a good day and do it in stages and not all at once. Always pace yourself to help avoid flare ups.

14. Try and get a rest every day. Sleep is very important for Fibro sufferers so if you have had a bad night rest for an hour in the afternoon. I have a daily nap between 3-4pm and if I miss it I feel tired late afternoon which then seems to trigger more pain.

15. Shop online then you don’t need to carry anything but still get your walks in on a daily basis if you can.

16. Keep a trigger journal it will remind you what and when you seem to get your flare ups.

17. Learn how to relax. If you have fibromyalgia, it’s important to regularly take time to relax or practise relaxation techniques. Stress can make your symptoms worse or cause them to flare up more often. There are many relaxation aids available, including books, tapes and courses.

18. Take up a hobby. Find something that really relaxes you. At the moment I am really into adult paint by numbers and find it very very relaxing to do. I also like knitting but do need to pace myself with knitting as it soon affects my arms.

19. Read up on as much information as you can about Fibromyalgia.

20. Buy a Fibromyalgia Awareness Medical Card.

Source: NHS Fibromyalgia News Support Fibro Creaky Joints Amazon

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5 OF THE BEST FIBROMYALGIA BOOKS…

Complete Fibromyalgia Health, Diet Guide and Cookbook by Dr Louise S. McCrindle and Dr Alison C. Bested. – The NHS estimates that fibromyalgia affects nearly 1 in 20 people worldwide. In England and Wales, there could be up to 1.76 million adults with the condition. 

This book, written by leading experts in fibromyalgia, gives common sense tools that will help fibromyalgia patients help themselves on to a road to improvement and perhaps recovery. It uses The SEEDS of health approach (Support, Environment, Exercise/Pacing, Diet/Drugs, Sleep) and has shown significant success rates in patients. The goal of this book is to help patients improve their ability to function and their quality of life. The treatment approach is centred around rebuilding: helping to decrease pain, control inflammation, improve sleep, improve cognitive function (reduce brain fog) and improve energy levels. The book is also a source of support for family and friends. This outstanding fibromyalgia resource provides the necessary hope, support and resources for a condition that is often misunderstood or left undiagnosed and untreated for many years. It is available from multiple bookshops but is on offer at The Book Depository for £12.78

10 Best Questions for Living with Fibromyalgia : The Script You Need to Take Control of Your Health by Dede Bonner & Dr Wood.

This book is an indispensable resource that empowers fibromyalgia patients to take charge of a debilitating disease and get the health care they deserve. The expert advice found within The 10 Best Questions(TM) for Living with Fibromyalgia gives readers the answers they need to get the best care possible and enjoy a more normal life.

This essential book provides the Best Questions that patients should ask their doctors, partners, children, and friends, accompanied by the “best answers” drawn from cutting-edge research and extensive interviews with the top experts in the field. There are chapters on what to ask about your diagnosis, test results, second opinions, ongoing disease management, losing weight, getting more sleep, and making other healthy lifestyle changes.

This practical and holistic book also offers the Best Questions and advice for fibromyalgia patients for their relationships with partners, children, and friends to ensure emotional, financial, and spiritual health. Each chapter concludes with The Magic Question(TM), the one crucial question most people never think to ask until it’s too late from £18.89

How to Live Well with Chronic Pain and Illness : A Mindful Guide by Toni Bernhard

Comfort, understanding, and advice for those who are suffering–and those who care for them.

Chronic illness creates many challenges, from career crises and relationship issues to struggles with self-blame, personal identity, and isolation. Beloved author Toni Bernhard addresses these challenges and many more, using practical examples to illustrate how mindfulness, equanimity, and compassion can help readers make peace with a life turned upside down.

In her characteristic conversational style, Bernhard shows how to cope and make the most of life despite the challenges of chronic illness. Benefit from:
– Mindfulness exercises to mitigate physical and emotional pain
– Concrete advice for negotiating the everyday hurdles of medical appointments, household chores, and social obligations
– Tools for navigating the strains illness can place on relationships

Several chapters are directed toward family and friends of the chronically ill, helping them to understand what their loved one is going through and how they can help.

Humorous and empathetic, Bernhard shares her own struggles and setbacks with unflinching honesty, offering invaluable support in the search to find peace and well-being. From £12.79

Reverse Therapy: Chronic Fatigue, Fibromyalgia and related Disorders by John Eaton.

This is the new version of the best-selling 2005 Book M.E., Chronic Fatigue Syndrome and Fibromyalgia – The Reverse Therapy approach and replaces that book entirely. Contains new and up-to-date information on the Reverse Therapy approach as well as explanations for the conditions it treats.

These conditions include chronic fatigue syndrome, fibromyalgia, tension myositis, medically unexplained pain, irritable bowel syndrome (IBS), eczema, psoriasis and auto-immune disease. Reverse Therapy is a radical Bodymind healing process and is an effective treatment for Chronic Fatigue Syndrome, Fibromyalgia and other medically unexplained disorders. It has helped thousands of people recover from these disorders since it was first offered to the General Public in 2003.

Dr John Eaton explains Reverse Therapy in simple terms, accessible to the general reader. He describes how he evolved the ideas for Reverse Therapy and the underlying treatment process. Other chapters explain the nature of these illnesses and what exactly causes the symptoms. Then John goes on to describe how Reverse Therapy works and what sufferers can do to get well again. This may well be the first and last book anyone will need to buy in order to understand CFS and Fibromyalgia and find the way to their cure. Dr John Eaton founded Reverse Therapy in 2002. He is also a registered psychotherapist and has been practicing in the UK since 1990. from £9.70

Married to Fibro : An Intimate Journey Living with and Loving Those with Fibromyalgia by Tina Marie Birkhoff.

There is hope. We are the support systems for loved ones suffering from Fibromyalgia. I have lived with Fibromyalgia in my house for almost two decades. Several of my friends have fibro and look for support within their friends or family circles. I’ve seen the frustration, sadness, loss of hope and despair that affects the sufferer, the spouse, and the rest of the family. My article published in Fibromyalgia Life and Chronic Pain Magazine; Issue 5 “In My Shoes” was the beginning of my awareness of the need for support. We, the family and friends, are a silent group hurting on the inside with little direction

Married to Fibro is that direction, the support group for help. Over 5 million people have been diagnosed with Fibromyalgia in the United States alone. Ten per cent of those diagnosed with fibro are men. That means ninety per cent of the sufferers out there are moms, wives, daughters, sisters, aunts, grandmothers, and girlfriends with Fibromyalgia and chronic pain. Through my experiences and successes, Married to Fibro is a book of learning, education and hope. I am proof! Today is the day you and your loved ones start living a new life after the diagnosis of Fibromyalgia. Dive into my life, my findings and my newfound hope. As you learn more about the disorder and find that there is support, you will become a better, stronger, more joyful you in the light of supporting someone living with Fibromyalgia, from £9.63

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A RECENT STUDY FINDS ONE IN 20 PEOPLE SUFFER FROM LONG-TERM COVID…

The BBC writes that a recent study found one in 20 people suffer from long-term covid symptoms.

The study which was led by the University of Glasgow showed that the effects of covid were more likely to occur after the injections were severe enough to require hospitalisation. It also showed that the most at-risk people were older women from deprived communities.

It also found that people who were vaccinated before they became unwell with covid appeared to be protected from the long-term covid symptoms.

The most reported symptoms included breathlessness, chest pain, palpitations, and confusion or “brain fog”.

It is also possible that long Covid was more likely in those with pre-existing physical and mental health problems, such as respiratory disease or depression.

Jill Pell, professor of Public Health who led the study, said: “While most people recover quickly and completely after infection with Covid, some people develop a wide variety of long-term problems.

The research found that 6% of people felt they had not recovered at all, while 42% reported feeling only partially recovered between six and 18 months following the Covid infection.

The study also found that those with asymptomatic infection had no long-term impact.

I have recently recovered from Covid and I had all my vaccinations but I have had a number of steroid injections over the last year which they did warn me could affect how poorly I was should I contract Covid.

For me personally, the worst was the aches and pains and the rapid heart rate. I felt as though I was coming down with a cold a few days earlier with the usual sore throat and feeling rough but the fatigue which came with it has taken the longest to get over. I am still extremely tired 4 weeks after having the condition but I think a lot of that is due to my Fibromyalgia and Chronic Pain. However, I feel sure had I not had all my vaccinations I would have suffered much worse.

By now I think we must all know that being fully vaccinated can reduce the likelihood of developing long Covid and I would encourage anyone who is eligible to take the opportunity to enhance their protection by getting vaccinated.

Source: BBC