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THE BEST TIPS FOR NEWLY DIAGNOSED FIBRO SUFFERERS FROM OTHER SUFFERERS…

Fibro Blogger Directory is a brilliant site for any newly diagnosed fibromyalgia sufferer. CONNECTING the fibro blogging community, inspired by all the fibro bloggers and their stories.

Blogging is a powerful tool and by connecting we can be a stronger voice in raising fibromyalgia awareness. At Fibro Blogger Directory they aim to: 

  • Connect fibro bloggers
  • Help raise awareness of Fibromyalgia
  • Provide information to the world wide web and other media about fibro bloggers
  • Offer Directory members support through link ups, the newsletter, opportunities to promote your posts, and our private facebook group where we discuss and help each other with blogging.

They also have a private Facebook page which has daily links with its members from Twitter Tuesday to Sunday Sharathon.

The month of May is Fibromyalgia Awareness Month and Fibro Blogger has put a post together which has lots of other Fibro Blogger members posting their unique tips for newly diagnosed fibro patients. The posts are unique and will help anyone suffering from this debilitating condition.

Check out some tips below –

Accepting Fibromyalgia including top tips for coping

The Complete Introduction to Fibromyalgia 2022: Symptoms, Diagnosis and Treatment

How to make an easy immune boosting, pain fighting juice

You just have to flex with fibro

 

Here is Mel Sandor’s quote “I would tell anyone who is diagnosed today to ask what would the doctor do next? What should they do next and what doctor should they see next. I would also ask for any words of wisdom from their experience.”

What You Need to Know After a Fibromyalgia Diagnosis

10 Chronic Pain Distractions For Less Stress

Do You Know Fibro

Tip #1 from Donna Gregory @ www.fedupwithfatigue.com: Don’t blindly accept your diagnosis

My first advice to anyone newly diagnosed with fibromyalgia is to question your diagnosis. Fibro is a diagnosis of exclusion, meaning all other possible medical conditions have to be ruled out by your physician. Are you sure he or she did that?

Too often physicians label someone with fibromyalgia because it’s the path of least resistance.

But I would encourage you not to blindly accept your diagnosis. Here’s why: A Canadian study found that up to two-thirds of fibromyalgia patients have been misdiagnosed.

The implications of that are huge. That means millions of fibromyalgia sufferers are living with undiagnosed conditions, some of which are probably treatable!

It’s also important to realize fibromyalgia is NOT a disease in and of itself. It is a syndrome, which means it’s a collection of symptoms of unknown origin. It’s important to dig deeper into your symptoms with the help of a knowledgeable medical provider to try to find the underlying cause of your illness. Many things can cause fibromyalgia symptoms, including undiagnosed infections, mold exposure, thyroid dysfunction and others.

Tip #2 from Donna Gregory @ www.fedupwithfatigue.com: Find the right doctor (and that’s probably NOT your primary-care physician or rheumatologist).

Medscape’s 2016 Physician Compensation Report found doctors average around 15 minutes per patient visit. That works if you’ve got something simple like the flu or toenail fungus, but if you’re living with a complicated chronic illness like fibromyalgia, it’s not going to cut it.

Instead, seek out medical providers who practice functional medicine, which takes a more systematic, whole-body approach to healthcare. Our chronic pain, digestive troubles, migraines, exhaustion and the myriad of other fibro symptoms we experience are all linked and should be treated as such.

IFM.org has a physician locator to help find functional medicine practitioners in your area. Other fibro sufferers who have had good results with naturopaths, osteopathic doctors and even chiropractors.

Top 5 Fibro Newbie Tips

Top tips for the newly diagnosed with Fibromyalgia

TIPS FOR SOMEONE NEWLY DIAGNOSED WITH FIBROMYALGIA

May Is Fibromyalgia Awareness Month

DIAGNOSED RA AND FIBRO – DON’T GIVE UP

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11 WAYS TO HELP YOU FEEL HAPPY AND MORE ENERGETIC…

We all need a bit of pampering every now and then, something to lift your spirits and make you feel good. What’s your secret feel-good tonic? Mine is time with my grandchildren, reading, and sitting in the garden when it’s warm enough to do so. I also love a stroll on one of the beautiful South Downs links which we are lucky enough to live nearby.

Here are some ideas for you to try…

  1. Nurturing yourself in nature. Studies have shown that spending time in nature boosts mental and physical health. You might live in a city, or just feel you never have enough time to get outside but with the lighter nights, you could always go after work. Take note of all the beautiful little things, such as insects and buds. Take some pictures with your smartphone to remind you of your walk-in nature.
  2. Say yes to having some time playing as playfulness can boost your productivity. Over Christmas, our family played more board games during that time that we had done all year. We laughed so much that I said we (our family) should meet up once a month for a board night so we could replicate the ones we had over Christmas. So, either once a week or once a month play a board game instead of watching TV.
  3. Eat regularly if you want to swerve the rollercoaster of enough highs and lows that occur when eating sugary foods. We all know the right food makes us feel better but make a conscious effort to plan your week’s food to include lots of B vitamins, and reach for eggs, nuts, avocados and greens. Lean protein gives the body fuel to repair and build tissues.
  4. Have a go at meditating as it can be used not just for relaxation, but to boost your mood and energy levels. There are a ton of videos on UTube you can follow to help relax your brain which allows for more optimal function in the brain and body which then leads to more energy overall.
  5. Buy some beautiful essential oils particular lavender which has long been established with promoting relaxation. Lots of other scents like peppermint, rosemary and bergamot oil are good to boost your energy. They can be used in a diffuser to make the whole house smell lovely. I used to have a regular aromatherapy massage and my therapist would make a mixture of lavender with other oils to help me relax and I still use those oils in my diffuser. They remind me of how relaxed I used to feel after each session.
  6. Treat yourself to a houseplant which has now become very popular and therapeutic. Houseplants don’t just add colour to your home, they also help clean the air and provide more oxygen and they have been shown to reduce anxiety and depression. There is nothing like watching your plant grow. Some of the best energy-boosting plants are jasmine, rosemary, and peace Lillie. Peace lilies as said to promote peace and tranquillity, remove toxins and increase positive energy and are one the easiest plants to keep.
  7. Buy yourself some fresh flowers. This small happy thing could lead you to enjoy creating flower arrangements as a hobby or even making things out of the flowers from pressing them to drying them. Living wreaths are all the rage now and there are lots of one-day workshops you could try and is such a lovely way to spend a couple of hours.
  8. Go to the cinema for a change. I have some of my most vivid childhood memories of when we used to sneak snacks and a drink in our bags to enjoy while watching a matinee. There are also lots of small cinemas which were old theatres being used more now and some show some of the old films we all used to watch.
  9. Plan a special trip. I wrote a list of 30 things I wanted to try and achieve this year and one of them was to go to see a show in London. My best friend and I have just booked to go and see one and to also have afternoon tea at The Ritz beforehand. Something which has been on my bucket list for a long time.
  10. Keep in touch with your friends. If you cannot make it out to see them then book a Zoom call and sit with your glass of wine like you would if you were out and have a good catch up. I use a great site called Jackie Lawson ecards as she makes the most beautiful ecards which have music and move and sometimes, I will send all my friends one each just to say I was thinking of them. Friendship is very precious and a chat with a friend can make you feel tons better.
  11. Take up a new hobby. This is something I could not manage without and I have a number of hobbies including reading, making cards, painting, baking and of course blogging. The list is endless.

Source: Jackie Lawson, The Ritz, Back Pain Blog

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10 TIPS FOR NEWLY DIAGNOSED FIBROMYALGIA SUFFERERS…

If you have been newly diagnosed with Fibromyalgia here are a few tips to help you deal with the condition.

1. Never be afraid to ask for help, be it with the shopping, cooking or cleaning. As most sufferers tend to ‘look fine’ most people do not realise the pain they are suffering inside, so if you don’t ask you won’t get help. 2. If work is leaving you exhausted and in pain, then design a flexible plan that works for you and your boss. Ask about working from home part-time, or setting your hours for earlier or later in the day so you can be more productive, during this busy time.

2. At the office, rearrange your workspace for comfort and easy accessibility. A telephone headset, keyboard tray, or other products may help put less stress on your body.

3. Don’t try to always put on a happy face. Your loved ones need to know what makes your symptoms worse.

4. Rest, rest and more rest, every little helps to recharge your batteries. When you feel that overwhelming urge to sleep try and get forty winks.

5. Support groups can play an important part in the lives of people with chronic illnesses. Whether in person or online, they offer a safe place to talk with others who may share your frustrations and concerns.

6. Tomorrow is another day and with Fibromyalgia tomorrow can be a more comfortable day, so try to not think negative when you are having a bad day.

7. Keep all your ‘helpful’ pain relievers on hand, be it a hot water bottle, pillow, cushion or whatever you have that helps your pain.

8. A useful purchase for going out is a lightweight portable stadium seat which you can find on Amazon.

9. Also a sciatica support cushion can be great to have in your car while travelling. I could not manage many journeys without mine. There are lots to choose from.

10.This is an Adjustable Tripod Walking Stick and seat. If, like me you cannot stand for long in a queue then this is just perfect. The Height adjustable walking stick seat is designed to provide support and comfort and provides a stable and comfortable seated position when you need a break from standing.