#health, #Spoonie, Back Pain, CHRONIC PAIN, FIBROMYALGIA, Fibromyalgia Awareness Day, HEALTH, low back pain, M.E.

WORLD #FIBROMYALGIA AWARENESS DAY 12th MAY, 2020…

Help us to promote World Fibromyalgia Awareness Day on 12th May 2020 in any way you can. Some Fibro groups have created unique ways to help promote awareness.

Fibromyalgia UK is still there but with the COVID-19 virus cannot hold any events but say they still have a hotline and contact form.

The Fibro Blogger Directory should be your first port of call for anything to do with Fibro. There is a large database of bloggers who all write about Fibro in one way or another and it is an award-winning blog for all the work it’s writer Lee Good does for this condition. It is CONNECTING the fibro blogging community, inspired by all the fibro bloggers and their stories.

The biggest problem with Fibromyalgia is the fact that you have so much overall pain which has nothing to show for it.

It’s not that you want to go around with a plaque on your head saying ‘I’m in pain’, but if you look at the number of invisible symptoms of Fibromyalgia it makes you realise why people question your pain when there is nothing to show for it.

I had more sympathy for a broken metatarsal which was in plaster than I’ve ever had for my chronic pain and I wouldn’t have minded but once your foot is in plaster there is no pain.

Hopefully, the more awareness raised an out Fibromyalgia the more others will understand your condition. This infographic from Fibromyalgia Treatment Group explains it all.

Fibro and Chronic Pain Support Group promote the awareness day on a Facebook page which is an online event only so you can attend from the comfort of your home or work! Fibromyalgia (FMS) & ME/CFS Awareness Day for May 12th of each year, but will be recognized by us all year round. It isn’t just one day that we want awareness, it’s every day because every day we deal with chronic pain.

Together Walks is another US charity that has been set up to raise funds for research and help people connect for May 12th Fibromyalgia Awareness Day.*  More than 700 live champions and thousands of online champions have joined Together Walks. Obviously, with social distancing, the virtual walk will be the most popular. Click here to register for live and virtual 2018 Together Walks as well as to create and join walk teams.

There are a large number of symptoms of #fibromyalgia but the main symptoms as listed on the Fibromyalgia Support Network are -It is very important that other possible causes are ruled out. The number of, and severity of the rest of the symptoms, seems to be different for every person. They can also vary from day to day, even minute to minute. You could be walking along limping from severe pain in your left leg for a few minutes, that slowly wears off, only to have worse pain in your other leg next time you start walking.

The main symptoms of #fibromyalgia include:

      • Chronic widespread pain without apparent cause
      • Fatigue
      • Sleep Disturbance
      • Cognitive Dysfunction
      • Morning Stiffness
      • Cramping and Muscle Spasms
      • Restless Leg Syndrome
      • Digestive Problems
      • Headaches and Migraines
      • Skin Sensations
      • Balance Problems
      • Sensitivities – to just about everything are common as well. Sensitivities to:
        • Touch – It can feel ‘uncomfortable’ to be touched. Tickling can be completely unbearable.
        • Heat – sweats and feelings of breathlessness
        • Cold – increases in pain and difficulty getting warm
        • Changes in the weather – pain increases
        • Side effects from meds – more susceptible to side effects and side effects can be more severe. Also, a med that works well for one person can make another very ill.
        • Foods – Common foods that people become especially sensitive to include chilli, dairy, gluten and fatty foods.
        • Light – Bright or glary light can be an issue. So can seeing in low light levels.
        • Sound – Loud sound can cause tinnitus. It can also be very difficult to separate sounds, like when talking to someone in a noisy room.
        • Taste – Some tastes can appear stronger than others, and this can vary.
        • Smell – a sense of smell can be diminished, but it can also be more sensitive. Can cause nausea and headaches.
        • … the list goes on and on.

For me personally from this long list of symptoms I suffer mostly with chronic widespread pain, fatigue, sleep disturbance, digestive problems, balance problems and most definitely some of the sensitivities listed above. What do you suffer from most?

 

#backpainblog, #BACKPAINBLOGUK, #fibro, #fibromyalgia, FIBROMYALGIA, Fibromyalgia Awareness Day, fibromylagia, FMA UK

WORLD FIBROMYLAGIA AWARENESS DAY – 12th MAY, 2019…

On May 12th and throughout the month of May of each year, people worldwide spread awareness of fibromyalgia and other chronic pain conditions through live events, online activities, and personal efforts. In the UK our awareness day is 2nd – 9th September but we can still raise awareness in the UK this May.

Join the millions of people who will be participating on this day by holding various events to raise awareness for fibromyalgia, an invisible and debilitating chronic condition.

Awareness and funding are the keys to battling the enigma that is Fibromyalgia, and this day was created for just that.

Symptoms of Fibromyalgia may include heightening skin sensitivity – especially to pain, muscle stiffness, some difficulties sleeping, problems with memory and concentration, extreme tiredness, and headaches.

These symptoms are not uncommon in other diseases – and some sufferers don’t even experience all these symptoms – so it’s easy to see what makes fibromyalgia so tricky to diagnose.

There is no cure for fibromyalgia, so at the moment the only option for sufferers is to have a number of treatments. For example, medication such as painkillers and antidepressants are often prescribed.

Fibromyalgia Association has been involved in producing an online fibromyalgia learning package for professionals and patients.  Fibromyalgia UK have it and It is free and after testing a certificate can be printed off.  While some of it may obviously fit the American system rather than the NHS, it is still a useful resource with much valuable information.

#health, #Spoonie, Back Pain, CHRONIC PAIN, FIBROMYALGIA, Fibromyalgia Awareness Day, HEALTH, low back pain, M.E.

#FIBROMYALGIA AWARENESS DAY 12TH MAY 2018, EVENTS…

Help us to promote Fibromyalgia Awareness Day on 12th May 2018 in any way you can. Some Fibro groups have created unique ways to help promote awareness.

To mark Fibro Awareness Day the Flare Group meet at the Blackpool Tower for their annual Global Light up the Night where the Tower will once again light up in purple with a blue heart to represent both FM and Me.If you would like to get involved, visit or donate to any of their events or fundraisers please contact them by clicking here, you can also message them through their social network pages and groups.blackpool

 

Fibro and Chronic Pain Support Group promote the awareness day on a Facebook page which is an online event only so you can attend from the comfort of your home or work! Fibromyalgia (FMS) & ME/CFS Awareness Day for May 12th of each year, but will be recognized by us all year round. It isn’t just one day that we want awareness, it’s every day because every day we deal with chronic pain. We attend at the comfort of our home and work. We will be able to share together support, love, care and information. Fibro and Chronic Pain Support – Page Link: https://www.facebook.com/FibroandChronicPainSupport – International May 12th Light Up the Night Challenge
https://youtu.be/O4Bzevj6WGA

Fibrodaze also has the above and others on their list of Fibro Awareness online events

Fibromyalgia Action UK have an events page with a list of awareness events and have a Campaign Pack to help you organise your own event. It’s still not to late to sort one out. Their campaign pack is designed to help you share the message among your community about fibromyalgia and the significant impact that the condition has on their lives of those living with the condition, as well as family and friends of those affected. There is a range of materials available to download and print from the Fibromyalgia Action UK website, that you can use to promote your activity or to encourage people to talk about fibromyalgia.

May 12th International Awareness Day – Since 1992, they have been raising awareness for May 12th!  Each year landmarks and private homes around the world are lit with our colours on  May 12th. May 12th has been designated as International Awareness Day for Chronic Immunological and Neurological Diseases (CIND) since 1992. The CIND illnesses include Myalgic Encephalomyelitis (ME), Chronic Fatigue Syndrome (CFS), Fibromyalgia (FM), Gulf War Syndrome (GWS) and Multiple Chemical Sensitivity (MCS).May 12th was chosen as it is the birthday of Florence Nightingale. She was believed to have suffered from ME/CFS. In 2010, a write-up was done to give a history of May 12th. Their Facebook page has events and lots of info on Fibro and other conditions.

National Fibromyalgia and Chronic Pain Association are based in America and also support May 12th’s awareness day and have a map with links to events happening in the US.

Together Walks is another US charity that has been set up to raise funds for research and help people connect for May 12th Fibromyalgia Awareness Day.*  More than 700 live champions and thousands of online champions have joined Together Walks. Click here to register for live and virtual 2018 Together Walks as well as to create and join walk teams.  The Hub is an all-new website designed to help people create a fundraising event for fibromyalgia research and then promote it.

A few other events in the UK include –

Fibro Warriors Fibromyalgia Awareness Day Meal on Saturday 12th May, in Tameside.

Fibromyalgia Awareness is having a May Ball at Friern Manor on Saturday 12th May, in Brentwood.

Fibro PaIN is hosting a production of Invisible – One Woman’s Fight with Fibromyalgia -a play by CLM Productions and starring Charlie Maxx & Angie Walker about one woman’s fibromyalgia journey, on Saturday 12th May, in Renfrewshire.

If you have an event that has not been mentioned in this post please feel free to add to the comment section.