Category: Fibromyalgia Awareness Day

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THE BEST TIPS FOR NEWLY DIAGNOSED FIBRO SUFFERERS FROM OTHER SUFFERERS…

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Fibro Blogger Directory is a brilliant site for any newly diagnosed fibromyalgia sufferer. CONNECTING the fibro blogging community, inspired by all the fibro bloggers and their stories.

Blogging is a powerful tool and by connecting we can be a stronger voice in raising fibromyalgia awareness. At Fibro Blogger Directory they aim to: 

  • Connect fibro bloggers
  • Help raise awareness of Fibromyalgia
  • Provide information to the world wide web and other media about fibro bloggers
  • Offer Directory members support through link ups, the newsletter, opportunities to promote your posts, and our private facebook group where we discuss and help each other with blogging.

They also have a private Facebook page which has daily links with its members from Twitter Tuesday to Sunday Sharathon.

The month of May is Fibromyalgia Awareness Month and Fibro Blogger has put a post together which has lots of other Fibro Blogger members posting their unique tips for newly diagnosed fibro patients. The posts are unique and will help anyone suffering from this debilitating condition.

Check out some tips below –

Accepting Fibromyalgia including top tips for coping

The Complete Introduction to Fibromyalgia 2022: Symptoms, Diagnosis and Treatment

How to make an easy immune boosting, pain fighting juice

You just have to flex with fibro

 

Here is Mel Sandor’s quote “I would tell anyone who is diagnosed today to ask what would the doctor do next? What should they do next and what doctor should they see next. I would also ask for any words of wisdom from their experience.”

What You Need to Know After a Fibromyalgia Diagnosis

10 Chronic Pain Distractions For Less Stress

Do You Know Fibro

Tip #1 from Donna Gregory @ www.fedupwithfatigue.com: Don’t blindly accept your diagnosis

My first advice to anyone newly diagnosed with fibromyalgia is to question your diagnosis. Fibro is a diagnosis of exclusion, meaning all other possible medical conditions have to be ruled out by your physician. Are you sure he or she did that?

Too often physicians label someone with fibromyalgia because it’s the path of least resistance.

But I would encourage you not to blindly accept your diagnosis. Here’s why: A Canadian study found that up to two-thirds of fibromyalgia patients have been misdiagnosed.

The implications of that are huge. That means millions of fibromyalgia sufferers are living with undiagnosed conditions, some of which are probably treatable!

It’s also important to realize fibromyalgia is NOT a disease in and of itself. It is a syndrome, which means it’s a collection of symptoms of unknown origin. It’s important to dig deeper into your symptoms with the help of a knowledgeable medical provider to try to find the underlying cause of your illness. Many things can cause fibromyalgia symptoms, including undiagnosed infections, mold exposure, thyroid dysfunction and others.

Tip #2 from Donna Gregory @ www.fedupwithfatigue.com: Find the right doctor (and that’s probably NOT your primary-care physician or rheumatologist).

Medscape’s 2016 Physician Compensation Report found doctors average around 15 minutes per patient visit. That works if you’ve got something simple like the flu or toenail fungus, but if you’re living with a complicated chronic illness like fibromyalgia, it’s not going to cut it.

Instead, seek out medical providers who practice functional medicine, which takes a more systematic, whole-body approach to healthcare. Our chronic pain, digestive troubles, migraines, exhaustion and the myriad of other fibro symptoms we experience are all linked and should be treated as such.

IFM.org has a physician locator to help find functional medicine practitioners in your area. Other fibro sufferers who have had good results with naturopaths, osteopathic doctors and even chiropractors.

Top 5 Fibro Newbie Tips

Top tips for the newly diagnosed with Fibromyalgia

TIPS FOR SOMEONE NEWLY DIAGNOSED WITH FIBROMYALGIA

May Is Fibromyalgia Awareness Month

DIAGNOSED RA AND FIBRO – DON’T GIVE UP

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10 TIPS FOR NEWLY DIAGNOSED FIBROMYALGIA SUFFERERS…

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If you have been newly diagnosed with Fibromyalgia here are a few tips to help you deal with the condition.

1. Never be afraid to ask for help, be it with the shopping, cooking or cleaning. As most sufferers tend to ‘look fine’ most people do not realise the pain they are suffering inside, so if you don’t ask you won’t get help. 2. If work is leaving you exhausted and in pain, then design a flexible plan that works for you and your boss. Ask about working from home part-time, or setting your hours for earlier or later in the day so you can be more productive, during this busy time.

2. At the office, rearrange your workspace for comfort and easy accessibility. A telephone headset, keyboard tray, or other products may help put less stress on your body.

3. Don’t try to always put on a happy face. Your loved ones need to know what makes your symptoms worse.

4. Rest, rest and more rest, every little helps to recharge your batteries. When you feel that overwhelming urge to sleep try and get forty winks.

5. Support groups can play an important part in the lives of people with chronic illnesses. Whether in person or online, they offer a safe place to talk with others who may share your frustrations and concerns.

6. Tomorrow is another day and with Fibromyalgia tomorrow can be a more comfortable day, so try to not think negative when you are having a bad day.

7. Keep all your ‘helpful’ pain relievers on hand, be it a hot water bottle, pillow, cushion or whatever you have that helps your pain.

8. A useful purchase for going out is a lightweight portable stadium seat which you can find on Amazon.

9. Also a sciatica support cushion can be great to have in your car while travelling. I could not manage many journeys without mine. There are lots to choose from.

10.This is an Adjustable Tripod Walking Stick and seat. If, like me you cannot stand for long in a queue then this is just perfect. The Height adjustable walking stick seat is designed to provide support and comfort and provides a stable and comfortable seated position when you need a break from standing.

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WORLD #FIBROMYALGIA AWARENESS DAY 12th MAY, 2020…

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Help us to promote World Fibromyalgia Awareness Day on 12th May 2020 in any way you can. Some Fibro groups have created unique ways to help promote awareness.

Fibromyalgia UK is still there but with the COVID-19 virus cannot hold any events but say they still have a hotline and contact form.

The Fibro Blogger Directory should be your first port of call for anything to do with Fibro. There is a large database of bloggers who all write about Fibro in one way or another and it is an award-winning blog for all the work it’s writer Lee Good does for this condition. It is CONNECTING the fibro blogging community, inspired by all the fibro bloggers and their stories.

The biggest problem with Fibromyalgia is the fact that you have so much overall pain which has nothing to show for it.

It’s not that you want to go around with a plaque on your head saying ‘I’m in pain’, but if you look at the number of invisible symptoms of Fibromyalgia it makes you realise why people question your pain when there is nothing to show for it.

I had more sympathy for a broken metatarsal which was in plaster than I’ve ever had for my chronic pain and I wouldn’t have minded but once your foot is in plaster there is no pain.

Hopefully, the more awareness raised an out Fibromyalgia the more others will understand your condition. This infographic from Fibromyalgia Treatment Group explains it all.

Fibro and Chronic Pain Support Group promote the awareness day on a Facebook page which is an online event only so you can attend from the comfort of your home or work! Fibromyalgia (FMS) & ME/CFS Awareness Day for May 12th of each year, but will be recognized by us all year round. It isn’t just one day that we want awareness, it’s every day because every day we deal with chronic pain.

Together Walks is another US charity that has been set up to raise funds for research and help people connect for May 12th Fibromyalgia Awareness Day.*  More than 700 live champions and thousands of online champions have joined Together Walks. Obviously, with social distancing, the virtual walk will be the most popular. Click here to register for live and virtual 2018 Together Walks as well as to create and join walk teams.

There are a large number of symptoms of #fibromyalgia but the main symptoms as listed on the Fibromyalgia Support Network are -It is very important that other possible causes are ruled out. The number of, and severity of the rest of the symptoms, seems to be different for every person. They can also vary from day to day, even minute to minute. You could be walking along limping from severe pain in your left leg for a few minutes, that slowly wears off, only to have worse pain in your other leg next time you start walking.

The main symptoms of #fibromyalgia include:

      • Chronic widespread pain without apparent cause
      • Fatigue
      • Sleep Disturbance
      • Cognitive Dysfunction
      • Morning Stiffness
      • Cramping and Muscle Spasms
      • Restless Leg Syndrome
      • Digestive Problems
      • Headaches and Migraines
      • Skin Sensations
      • Balance Problems
      • Sensitivities – to just about everything are common as well. Sensitivities to:
        • Touch – It can feel ‘uncomfortable’ to be touched. Tickling can be completely unbearable.
        • Heat – sweats and feelings of breathlessness
        • Cold – increases in pain and difficulty getting warm
        • Changes in the weather – pain increases
        • Side effects from meds – more susceptible to side effects and side effects can be more severe. Also, a med that works well for one person can make another very ill.
        • Foods – Common foods that people become especially sensitive to include chilli, dairy, gluten and fatty foods.
        • Light – Bright or glary light can be an issue. So can seeing in low light levels.
        • Sound – Loud sound can cause tinnitus. It can also be very difficult to separate sounds, like when talking to someone in a noisy room.
        • Taste – Some tastes can appear stronger than others, and this can vary.
        • Smell – a sense of smell can be diminished, but it can also be more sensitive. Can cause nausea and headaches.
        • … the list goes on and on.

For me personally from this long list of symptoms I suffer mostly with chronic widespread pain, fatigue, sleep disturbance, digestive problems, balance problems and most definitely some of the sensitivities listed above. What do you suffer from most?