Blogging is a powerful tool and by connecting we can be a stronger voice in raising fibromyalgia awareness. At Fibro Blogger Directory they aim to:
- Connect fibro bloggers
- Help raise awareness of Fibromyalgia
- Provide information to the world wide web and other media about fibro bloggers
- Offer Directory members support through link ups, the newsletter, opportunities to promote your posts, and our private facebook group where we discuss and help each other with blogging.
They also have a private Facebook page which has daily links with its members from Twitter Tuesday to Sunday Sharathon.
The month of May is Fibromyalgia Awareness Month and Fibro Blogger has put a post together which has lots of other Fibro Blogger members posting their unique tips for newly diagnosed fibro patients. The posts are unique and will help anyone suffering from this debilitating condition.
Check out some tips below –
Here is Mel Sandor’s quote “I would tell anyone who is diagnosed today to ask what would the doctor do next? What should they do next and what doctor should they see next. I would also ask for any words of wisdom from their experience.”
Tip #1 from Donna Gregory @ www.fedupwithfatigue.com: Don’t blindly accept your diagnosis
My first advice to anyone newly diagnosed with fibromyalgia is to question your diagnosis. Fibro is a diagnosis of exclusion, meaning all other possible medical conditions have to be ruled out by your physician. Are you sure he or she did that?
Too often physicians label someone with fibromyalgia because it’s the path of least resistance.
But I would encourage you not to blindly accept your diagnosis. Here’s why: A Canadian study found that up to two-thirds of fibromyalgia patients have been misdiagnosed.
The implications of that are huge. That means millions of fibromyalgia sufferers are living with undiagnosed conditions, some of which are probably treatable!
It’s also important to realize fibromyalgia is NOT a disease in and of itself. It is a syndrome, which means it’s a collection of symptoms of unknown origin. It’s important to dig deeper into your symptoms with the help of a knowledgeable medical provider to try to find the underlying cause of your illness. Many things can cause fibromyalgia symptoms, including undiagnosed infections, mold exposure, thyroid dysfunction and others.
Tip #2 from Donna Gregory @ www.fedupwithfatigue.com: Find the right doctor (and that’s probably NOT your primary-care physician or rheumatologist).
Medscape’s 2016 Physician Compensation Report found doctors average around 15 minutes per patient visit. That works if you’ve got something simple like the flu or toenail fungus, but if you’re living with a complicated chronic illness like fibromyalgia, it’s not going to cut it.
Instead, seek out medical providers who practice functional medicine, which takes a more systematic, whole-body approach to healthcare. Our chronic pain, digestive troubles, migraines, exhaustion and the myriad of other fibro symptoms we experience are all linked and should be treated as such.
IFM.org has a physician locator to help find functional medicine practitioners in your area. Other fibro sufferers who have had good results with naturopaths, osteopathic doctors and even chiropractors.