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WORLD #FIBROMYALGIA AWARENESS DAY 12th MAY, 2020…

Help us to promote World Fibromyalgia Awareness Day on 12th May 2020 in any way you can. Some Fibro groups have created unique ways to help promote awareness.

Fibromyalgia UK is still there but with the COVID-19 virus cannot hold any events but say they still have a hotline and contact form.

The Fibro Blogger Directory should be your first port of call for anything to do with Fibro. There is a large database of bloggers who all write about Fibro in one way or another and it is an award-winning blog for all the work it’s writer Lee Good does for this condition. It is CONNECTING the fibro blogging community, inspired by all the fibro bloggers and their stories.

The biggest problem with Fibromyalgia is the fact that you have so much overall pain which has nothing to show for it.

It’s not that you want to go around with a plaque on your head saying ‘I’m in pain’, but if you look at the number of invisible symptoms of Fibromyalgia it makes you realise why people question your pain when there is nothing to show for it.

I had more sympathy for a broken metatarsal which was in plaster than I’ve ever had for my chronic pain and I wouldn’t have minded but once your foot is in plaster there is no pain.

Hopefully, the more awareness raised an out Fibromyalgia the more others will understand your condition. This infographic from Fibromyalgia Treatment Group explains it all.

Fibro and Chronic Pain Support Group promote the awareness day on a Facebook page which is an online event only so you can attend from the comfort of your home or work! Fibromyalgia (FMS) & ME/CFS Awareness Day for May 12th of each year, but will be recognized by us all year round. It isn’t just one day that we want awareness, it’s every day because every day we deal with chronic pain.

Together Walks is another US charity that has been set up to raise funds for research and help people connect for May 12th Fibromyalgia Awareness Day.*  More than 700 live champions and thousands of online champions have joined Together Walks. Obviously, with social distancing, the virtual walk will be the most popular. Click here to register for live and virtual 2018 Together Walks as well as to create and join walk teams.

There are a large number of symptoms of #fibromyalgia but the main symptoms as listed on the Fibromyalgia Support Network are -It is very important that other possible causes are ruled out. The number of, and severity of the rest of the symptoms, seems to be different for every person. They can also vary from day to day, even minute to minute. You could be walking along limping from severe pain in your left leg for a few minutes, that slowly wears off, only to have worse pain in your other leg next time you start walking.

The main symptoms of #fibromyalgia include:

      • Chronic widespread pain without apparent cause
      • Fatigue
      • Sleep Disturbance
      • Cognitive Dysfunction
      • Morning Stiffness
      • Cramping and Muscle Spasms
      • Restless Leg Syndrome
      • Digestive Problems
      • Headaches and Migraines
      • Skin Sensations
      • Balance Problems
      • Sensitivities – to just about everything are common as well. Sensitivities to:
        • Touch – It can feel ‘uncomfortable’ to be touched. Tickling can be completely unbearable.
        • Heat – sweats and feelings of breathlessness
        • Cold – increases in pain and difficulty getting warm
        • Changes in the weather – pain increases
        • Side effects from meds – more susceptible to side effects and side effects can be more severe. Also, a med that works well for one person can make another very ill.
        • Foods – Common foods that people become especially sensitive to include chilli, dairy, gluten and fatty foods.
        • Light – Bright or glary light can be an issue. So can seeing in low light levels.
        • Sound – Loud sound can cause tinnitus. It can also be very difficult to separate sounds, like when talking to someone in a noisy room.
        • Taste – Some tastes can appear stronger than others, and this can vary.
        • Smell – a sense of smell can be diminished, but it can also be more sensitive. Can cause nausea and headaches.
        • … the list goes on and on.

For me personally from this long list of symptoms I suffer mostly with chronic widespread pain, fatigue, sleep disturbance, digestive problems, balance problems and most definitely some of the sensitivities listed above. What do you suffer from most?

 

#backpainblog, #BACKPAINBLOGUK, #fibro, #fibromyalgia, FIBROMYALGIA, Fibromyalgia Awareness Day, fibromylagia, FMA UK

WORLD FIBROMYLAGIA AWARENESS DAY – 12th MAY, 2019…

On May 12th and throughout the month of May of each year, people worldwide spread awareness of fibromyalgia and other chronic pain conditions through live events, online activities, and personal efforts. In the UK our awareness day is 2nd – 9th September but we can still raise awareness in the UK this May.

Join the millions of people who will be participating on this day by holding various events to raise awareness for fibromyalgia, an invisible and debilitating chronic condition.

Awareness and funding are the keys to battling the enigma that is Fibromyalgia, and this day was created for just that.

Symptoms of Fibromyalgia may include heightening skin sensitivity – especially to pain, muscle stiffness, some difficulties sleeping, problems with memory and concentration, extreme tiredness, and headaches.

These symptoms are not uncommon in other diseases – and some sufferers don’t even experience all these symptoms – so it’s easy to see what makes fibromyalgia so tricky to diagnose.

There is no cure for fibromyalgia, so at the moment the only option for sufferers is to have a number of treatments. For example, medication such as painkillers and antidepressants are often prescribed.

Fibromyalgia Association has been involved in producing an online fibromyalgia learning package for professionals and patients.  Fibromyalgia UK have it and It is free and after testing a certificate can be printed off.  While some of it may obviously fit the American system rather than the NHS, it is still a useful resource with much valuable information.