Category: M.E.

#backpainblog, #BACKPAINBLOGUK, backpainbloguk, back pain, chronic pain, fibromyalgia, health, chromic pain, reviews, #fibromyalgia, #health, Back Pain, chronic fatigue, CHRONIC PAIN, FIBROMYALGIA, M.E.

BPB DAILY ALERT – NEW HOPE FOR SUFFERERS OF CHRONIC FATIGUE, ME AND FIBROMYALGIA…

barmac5

Today’s Back Pain Blog’s new Daily Alert is there is news that there is hope for sufferers of chronic fatigue, ME and fibromyalgia…

Tracey Turton from Cheshire Natural Health and a Reflexologist for 25 years wrote that a new revolutionary approach to these conditions has been pioneered by The Chrysalis Effect and is now becoming recognised by the medical profession as an effective long-term treatment for Chronic Fatigue, ME and Fibromyalgia. This programme recognises that mind, body, environment, lifestyle, dietary factors, relationships and the predisposition and susceptibility of a person are all part of the picture. Nothing happens in isolation, everything is interrelated. An effective treatment programme therefore needs to address all these different elements.

If you would like to find out more, book in for your free Discovery consultation where, based on your health profile, Tracey can tell you more about the recovery programmes so you will be able to decide if this approach is right for you. Get in touch on 01925 730123 or email tracey@cheshirenaturalhealth.co.uk. You can also book online through our website www.cheshirenaturalhealth.co.uk

#health, #Spoonie, Back Pain, CHRONIC PAIN, FIBROMYALGIA, Fibromyalgia Awareness Day, HEALTH, low back pain, M.E.

WORLD #FIBROMYALGIA AWARENESS DAY 12th MAY, 2020…

barmac5

Help us to promote World Fibromyalgia Awareness Day on 12th May 2020 in any way you can. Some Fibro groups have created unique ways to help promote awareness.

Fibromyalgia UK is still there but with the COVID-19 virus cannot hold any events but say they still have a hotline and contact form.

The Fibro Blogger Directory should be your first port of call for anything to do with Fibro. There is a large database of bloggers who all write about Fibro in one way or another and it is an award-winning blog for all the work it’s writer Lee Good does for this condition. It is CONNECTING the fibro blogging community, inspired by all the fibro bloggers and their stories.

The biggest problem with Fibromyalgia is the fact that you have so much overall pain which has nothing to show for it.

It’s not that you want to go around with a plaque on your head saying ‘I’m in pain’, but if you look at the number of invisible symptoms of Fibromyalgia it makes you realise why people question your pain when there is nothing to show for it.

I had more sympathy for a broken metatarsal which was in plaster than I’ve ever had for my chronic pain and I wouldn’t have minded but once your foot is in plaster there is no pain.

Hopefully, the more awareness raised an out Fibromyalgia the more others will understand your condition. This infographic from Fibromyalgia Treatment Group explains it all.

Fibro and Chronic Pain Support Group promote the awareness day on a Facebook page which is an online event only so you can attend from the comfort of your home or work! Fibromyalgia (FMS) & ME/CFS Awareness Day for May 12th of each year, but will be recognized by us all year round. It isn’t just one day that we want awareness, it’s every day because every day we deal with chronic pain.

Together Walks is another US charity that has been set up to raise funds for research and help people connect for May 12th Fibromyalgia Awareness Day.*  More than 700 live champions and thousands of online champions have joined Together Walks. Obviously, with social distancing, the virtual walk will be the most popular. Click here to register for live and virtual 2018 Together Walks as well as to create and join walk teams.

There are a large number of symptoms of #fibromyalgia but the main symptoms as listed on the Fibromyalgia Support Network are -It is very important that other possible causes are ruled out. The number of, and severity of the rest of the symptoms, seems to be different for every person. They can also vary from day to day, even minute to minute. You could be walking along limping from severe pain in your left leg for a few minutes, that slowly wears off, only to have worse pain in your other leg next time you start walking.

The main symptoms of #fibromyalgia include:

      • Chronic widespread pain without apparent cause
      • Fatigue
      • Sleep Disturbance
      • Cognitive Dysfunction
      • Morning Stiffness
      • Cramping and Muscle Spasms
      • Restless Leg Syndrome
      • Digestive Problems
      • Headaches and Migraines
      • Skin Sensations
      • Balance Problems
      • Sensitivities – to just about everything are common as well. Sensitivities to:
        • Touch – It can feel ‘uncomfortable’ to be touched. Tickling can be completely unbearable.
        • Heat – sweats and feelings of breathlessness
        • Cold – increases in pain and difficulty getting warm
        • Changes in the weather – pain increases
        • Side effects from meds – more susceptible to side effects and side effects can be more severe. Also, a med that works well for one person can make another very ill.
        • Foods – Common foods that people become especially sensitive to include chilli, dairy, gluten and fatty foods.
        • Light – Bright or glary light can be an issue. So can seeing in low light levels.
        • Sound – Loud sound can cause tinnitus. It can also be very difficult to separate sounds, like when talking to someone in a noisy room.
        • Taste – Some tastes can appear stronger than others, and this can vary.
        • Smell – a sense of smell can be diminished, but it can also be more sensitive. Can cause nausea and headaches.
        • … the list goes on and on.

For me personally from this long list of symptoms I suffer mostly with chronic widespread pain, fatigue, sleep disturbance, digestive problems, balance problems and most definitely some of the sensitivities listed above. What do you suffer from most?

 

#backpainblog, #BACKPAINBLOGUK, backpainbloguk, back pain, chronic pain, fibromyalgia, health, chromic pain, reviews, #fibromyalgia, Back Pain, CHRONIC PAIN, FIBROMYALGIA, M.E.

M.E. MYALGIC ENCEPHALOMYELITIS AWARENESS WEEK 6th-12th MAY. 2019…

barmac5

ME Awareness Week will run from 6th to 12th May 2019 with many activities focused on ME Awareness Day itself (Sunday 12th May). The focus of the ME Association’s awareness campaign for 2019 will be the Real M.E.

Promoting REAL stories and photos from REAL people, telling the world about the REAL disease that is M.E!  We’ll be sharing many of the hundreds of photographs and stories that you have sent to us, showing how this cruel disease can vary so much in intensity and severity both from person to person and even from one minute to the next for each person affected.

ME Association fundraisers are busy working up their madcap ideas for how they will Go BLUE in 2019.

Why BLUE?  Because blue is the internationally accepted and recognised colour of M.E. Awareness. How you GO BLUE is entirely up to you… How far you go BLUE is also entirely up to you. Just do all you can to colour in this cruel invisible illness….

Here are some ideas from ME Association -BLUE faces, BLUE hair, BLUE nails, BLUE themed raffle, BLUE profile photographs on social media, BLUE tongues, BLUE balloons tied to garden gates, Bake sales, plant sales, tea parties, supermarket and shopping centre collections, walks, concerts, orienteering, fun days… of perhaps a virtual BLUE Sunday.

People with M.E. disappear from society and can easily be forgotten and overlooked. Our mission for ME Awareness Week is to rectify that with our Real M.E. campaign. With your help.

Please share REAL stories and images far and wide between 6th and 12th May.

Myalgic Encephalomyelitis (M.E.) is a long-term (chronic) fluctuating illness that affects many parts of the body, more commonly the nervous and immune systems. It may be diagnosed as Chronic Fatigue Syndrome (CFS).

What is M.E.?

Symptoms vary from person to person but can include:
Physical and mental exhaustion (fatigue), which feels very different from ordinary tiredness
Post-exertional malaise: this means that any physical or mental activity can bring on an increase in symptoms, but not straight away
Intense muscle or joint pain
Inability to speak or concentrate
Extreme flu-like symptoms
Sleep disturbance
Dizziness and/or nausea
Hyper-sensitivity to light and sound.

Many people still believe that M.E. is all in the mind. This is simply untrue. Research has found potential biomarkers (physical evidence) for M.E. but much more research needs to be done to confirm the cause (or causes) and a cure.

Why should you care?

M.E. can affect anyone. It doesn’t care how old or young you are, or where you come from. People of any age, including children, can get M.E. It currently affects 1 in 250 people in the UK alone.

Some manage to struggle on with their lives. Others spend most of their time bedbound or housebound, unable to perform basic functions unaided.

One of the biggest frustrations expressed by people with M.E. is that family, friends, the media and even doctors often don’t believe their illness is real, or fail to understand just how debilitating it is. With your help, they can change this.