Fibromyalgia Connect is the online social network for people and families living with fibromyalgia.
It has fresh information and real support, fueled by an active, caring community.
They make it easy to start conversations, share treatments, read and post product recommendations, and much more.
They also provide tools for its members to discuss the topics that they are passionate about. While the content is important, it is the sharing of a news story, the discovery of the latest treatments and the conversations between members that sets them apart.
Fibromyalgia Connect is owned and operated by Alliance Health. Their mission is to create social health networks that connect people to support communities for a growing number of health conditions.
There are lots of discussions on just about everything you can think of about Fibromyalgia and more.
If you suffer from pain in your hands and fingers and struggle to hold your pen then try sliding an old foam roller (with the centre taken out) onto your pen.
You can also use this same method for a cutting knife in your kitchen.
If you are struggling to stand in your kitchen to do simple cooking tats then invest in an office chair with wheels to slide across the floor.
Instead of standing struggling to wash the dishes up fill your sink up with very hot water and drop a dishwasher tablet in then add the dirty dishes. Go back a little later and all you will need to do is rinse your dishes under the water and they will be beautifully clean.
If you are struggling to get in and out of the bath, then try putting a towel on the edge of the bath to make it easy to swivel in and out.
They say back pain affects 80pc of the population at some point in their lives. Mine, started in my late 20s with extremely debilitating low back pain. Treatment in the first years consisted of physiotherapy and manipulation by an osteopath and chiropractor but eventually surgery was the only option.
Another three spinal surgeries followed the first one, then physiotherapy and then eventually I was put under a pain consultant for long term care. The pain consultant soon made me realise that there were many other options to surgery and I decided I wanted to try everyone of them. The question was which one to try first.
I decided to go down the holistic route first and had acupuncture, then massage, then reflexology. They all seem to help for short periods of time but none were a permanent fix. When I first started at the pain clinic, massage and acupuncture were done through the NHS, now all this has stopped.
Every week in the daily papers I read about another treatment for back pain from botox injections, epidurals, trigger points, heat therapy, light therapy and the list goes on and on.
There are also a number of products that you can buy to help with the pain from heat pads, tens machines and special cushions and mattresses. With so much to choose from and most of it being quite expensive to fund, it is no surprise that most people just stick to taking medication.
But medication has it’s own problems with long term usage. From stomach problems, bowel problems and addiction to name a few. All of this makes it very hard for someone who is suffering from chronic pain to decide which route to go down. Support groups can be helpful but there are not that many just for ‘back pain’ sufferers.
A blend of natural oils which have been drawn from five different countries is being used as a pain treatment for Fibromyalgia.
Called 024 Fibromyalgia, it has been developed by Swiss Medica in Canada and is available in a bottle or as a wipe.
It is made up of camphor oil (Japan), eucalyptus oil (Australia) aloe vera oil (Mexico) peppermint oil (India) rosemary oil (Spain) lemon oil (USA) and orange oil (USA).
It was launched in the USA in January 2006 and is one of the first products that was developed specifically for the pain of Fibromyalgia. It’s all clinically tested and from natural products.
Many Fibromyalgia forums have written comments on this oil with some having great results and others no so great, but that can be the same with drugs or treatments as it seems pains affects people differently.