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THE BEST TIPS FOR NEWLY DIAGNOSED FIBRO SUFFERERS FROM OTHER SUFFERERS…

Fibro Blogger Directory is a brilliant site for any newly diagnosed fibromyalgia sufferer. CONNECTING the fibro blogging community, inspired by all the fibro bloggers and their stories.

Blogging is a powerful tool and by connecting we can be a stronger voice in raising fibromyalgia awareness. At Fibro Blogger Directory they aim to: 

  • Connect fibro bloggers
  • Help raise awareness of Fibromyalgia
  • Provide information to the world wide web and other media about fibro bloggers
  • Offer Directory members support through link ups, the newsletter, opportunities to promote your posts, and our private facebook group where we discuss and help each other with blogging.

They also have a private Facebook page which has daily links with its members from Twitter Tuesday to Sunday Sharathon.

The month of May is Fibromyalgia Awareness Month and Fibro Blogger has put a post together which has lots of other Fibro Blogger members posting their unique tips for newly diagnosed fibro patients. The posts are unique and will help anyone suffering from this debilitating condition.

Check out some tips below –

Accepting Fibromyalgia including top tips for coping

The Complete Introduction to Fibromyalgia 2022: Symptoms, Diagnosis and Treatment

How to make an easy immune boosting, pain fighting juice

You just have to flex with fibro

 

Here is Mel Sandor’s quote “I would tell anyone who is diagnosed today to ask what would the doctor do next? What should they do next and what doctor should they see next. I would also ask for any words of wisdom from their experience.”

What You Need to Know After a Fibromyalgia Diagnosis

10 Chronic Pain Distractions For Less Stress

Do You Know Fibro

Tip #1 from Donna Gregory @ www.fedupwithfatigue.com: Don’t blindly accept your diagnosis

My first advice to anyone newly diagnosed with fibromyalgia is to question your diagnosis. Fibro is a diagnosis of exclusion, meaning all other possible medical conditions have to be ruled out by your physician. Are you sure he or she did that?

Too often physicians label someone with fibromyalgia because it’s the path of least resistance.

But I would encourage you not to blindly accept your diagnosis. Here’s why: A Canadian study found that up to two-thirds of fibromyalgia patients have been misdiagnosed.

The implications of that are huge. That means millions of fibromyalgia sufferers are living with undiagnosed conditions, some of which are probably treatable!

It’s also important to realize fibromyalgia is NOT a disease in and of itself. It is a syndrome, which means it’s a collection of symptoms of unknown origin. It’s important to dig deeper into your symptoms with the help of a knowledgeable medical provider to try to find the underlying cause of your illness. Many things can cause fibromyalgia symptoms, including undiagnosed infections, mold exposure, thyroid dysfunction and others.

Tip #2 from Donna Gregory @ www.fedupwithfatigue.com: Find the right doctor (and that’s probably NOT your primary-care physician or rheumatologist).

Medscape’s 2016 Physician Compensation Report found doctors average around 15 minutes per patient visit. That works if you’ve got something simple like the flu or toenail fungus, but if you’re living with a complicated chronic illness like fibromyalgia, it’s not going to cut it.

Instead, seek out medical providers who practice functional medicine, which takes a more systematic, whole-body approach to healthcare. Our chronic pain, digestive troubles, migraines, exhaustion and the myriad of other fibro symptoms we experience are all linked and should be treated as such.

IFM.org has a physician locator to help find functional medicine practitioners in your area. Other fibro sufferers who have had good results with naturopaths, osteopathic doctors and even chiropractors.

Top 5 Fibro Newbie Tips

Top tips for the newly diagnosed with Fibromyalgia

TIPS FOR SOMEONE NEWLY DIAGNOSED WITH FIBROMYALGIA

May Is Fibromyalgia Awareness Month

DIAGNOSED RA AND FIBRO – DON’T GIVE UP

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10 TIPS FOR NEWLY DIAGNOSED FIBROMYALGIA SUFFERERS…

If you have been newly diagnosed with Fibromyalgia here are a few tips to help you deal with the condition.

1. Never be afraid to ask for help, be it with the shopping, cooking or cleaning. As most sufferers tend to ‘look fine’ most people do not realise the pain they are suffering inside, so if you don’t ask you won’t get help. 2. If work is leaving you exhausted and in pain, then design a flexible plan that works for you and your boss. Ask about working from home part-time, or setting your hours for earlier or later in the day so you can be more productive, during this busy time.

2. At the office, rearrange your workspace for comfort and easy accessibility. A telephone headset, keyboard tray, or other products may help put less stress on your body.

3. Don’t try to always put on a happy face. Your loved ones need to know what makes your symptoms worse.

4. Rest, rest and more rest, every little helps to recharge your batteries. When you feel that overwhelming urge to sleep try and get forty winks.

5. Support groups can play an important part in the lives of people with chronic illnesses. Whether in person or online, they offer a safe place to talk with others who may share your frustrations and concerns.

6. Tomorrow is another day and with Fibromyalgia tomorrow can be a more comfortable day, so try to not think negative when you are having a bad day.

7. Keep all your ‘helpful’ pain relievers on hand, be it a hot water bottle, pillow, cushion or whatever you have that helps your pain.

8. A useful purchase for going out is a lightweight portable stadium seat which you can find on Amazon.

9. Also a sciatica support cushion can be great to have in your car while travelling. I could not manage many journeys without mine. There are lots to choose from.

10.This is an Adjustable Tripod Walking Stick and seat. If, like me you cannot stand for long in a queue then this is just perfect. The Height adjustable walking stick seat is designed to provide support and comfort and provides a stable and comfortable seated position when you need a break from standing.

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A “MUST-READ” ARTICLE FOR ANY FIBROMYALGIA SUFFERERS…

An article on the National Fibromyalgia Association website struck a nerve with me and I am sure will strike a nerve with hundreds of other Fibromyalgia sufferers.

In the article, Sick and Tired Dr David Saul, says how he feels ashamed to be a member of the medical profession when he hears from Fibromyalgia patients that they are left in tears from a doctor’s office after being addressed in a rude and abrupt manner.

I have read more times than I can count of endless sufferers being given the brush off and told it’s all in your head ( myself included) so to read this being written by a Doctor was a breath of fresh air. He goes on to say that whenever a patient with FM hears any of those statements it surely goes against the famous dictum from Hippocrates, “Divinum est opus sedare dolorem” Divine is the work to subdue pain.

One quote from a sufferer says it all “It is humanly impossible to explain living with pain and fatigue to someone who does not have it.”

Sick and Tired – By Dr. David Saul
Reprinted from FMOnline

I feel ashamed to be a member of the medical profession when I hear from my fibromyalgia (FM) patients that they left in tears from a doctor’s office after being addressed in a rude and abrupt manner.

For doctors who are sceptical about the diagnosis of FM, this article is for you. Perhaps you have assessed a few (or many) patients with generalized pain. This pain is either steady or episodic and defies any common structural or mechanical cause. You are then faced with the absence of any laboratory and diagnostic testing to confirm the diagnosis of FM. You find that the typical FM patient seems to overdo the crying, whining and complaining of pain, which to them is often seen as incapacitating. You likely have tried various medications without any beneficial response.

When you really don’t know what else to do, you might just give up on the patient and the whole concept of FM. However, medicine is full of unknowns and processes yet to be determined. As doctors, we should still try to practice good clinical medicine despite and amid various uncertainties. But, for the patient who complains of FM-related symptoms, have you ever felt perhaps a tiny bit concerned about the psychological impact you may have on her, should you respond with any of the following statements?

  • It’s all in your head.
  • Buck up and fight through the pain.
  • There is no such thing as fibromyalgia.
  • Do you want to get addicted to painkillers?
  • You are wasting my time.

Whenever a patient with FM hears any of those statements it surely goes against the famous dictum from Hippocrates, “Divinum est opus sedare dolorem” Divine is the work to subdue pain.”

Read the full article here then share this story like I am on all your social media sites. The more people who read this, especially in the medical profession can only help sufferers get the right diagnosis.

Source: National Fibromyalgia Association