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WORLD FIBROMYLAGIA AWARENESS DAY – 12th MAY, 2019…

On May 12th and throughout the month of May of each year, people worldwide spread awareness of fibromyalgia and other chronic pain conditions through live events, online activities, and personal efforts. In the UK our awareness day is 2nd – 9th September but we can still raise awareness in the UK this May.

Join the millions of people who will be participating on this day by holding various events to raise awareness for fibromyalgia, an invisible and debilitating chronic condition.

Awareness and funding are the keys to battling the enigma that is Fibromyalgia, and this day was created for just that.

Symptoms of Fibromyalgia may include heightening skin sensitivity – especially to pain, muscle stiffness, some difficulties sleeping, problems with memory and concentration, extreme tiredness, and headaches.

These symptoms are not uncommon in other diseases – and some sufferers don’t even experience all these symptoms – so it’s easy to see what makes fibromyalgia so tricky to diagnose.

There is no cure for fibromyalgia, so at the moment the only option for sufferers is to have a number of treatments. For example, medication such as painkillers and antidepressants are often prescribed.

Fibromyalgia Association has been involved in producing an online fibromyalgia learning package for professionals and patients.  Fibromyalgia UK have it and It is free and after testing a certificate can be printed off.  While some of it may obviously fit the American system rather than the NHS, it is still a useful resource with much valuable information.

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TOP 12 VITAMINS AND MINERALS FOR JOINT PAIN AND FIBROMYALGIA…

#BackPainBlog’s top 12 #vitamin and minerals choice for joint pain and #fibromyalgia are :

1.Bromelain

Bromelain is a naturally occurring enzyme from the stem of the pineapple plant. It has anti-inflammatory actions and reduces pain and swelling.

2.Calcium

Calcium is the most abundant mineral in our body, with 99% found in our bones and teeth. A good calcium intake is vital for growth and for healthy bones and teeth. It can also play a role in nerve contraction and blood clotting.

3.Chondroitin Sulphate

Chondroitin sulphate is a natural substance found in the body which stimulates the formation of cartilage and joint connective tissues. It attracts water into the joints, which acts as a shock absorber as well as a nutrient.

4.Cod Liver Oil

Cod Liver oil is a naturally occurring fish oil that has been used for generations. It is widely taken to help support joints, heart, brain, eyes, and immunity.

5.Devil’s Claw

Devil’s Claw has a natural anti-inflammatory pain-killing action and is taken for back, and joint pain in #fibromyalgia.

6.Ginger Extract

Ginger is one of the oldest medicinal spices and is used as a warming analgesic, with anti-inflammatory properties.

7.Ginkgo biloba

The Ginkgo biloba tree is among the oldest living species, dating back over 270 million years. It has a thinning action on blood to improve circulation to the hands and feet.

8.Green-lipped Mussel

Green-lipped mussels grow in the unique marine conditions found around parts of New Zealand. It helps to reduce inflammation in joints and is mainly used to help reduce symptoms of arthritis, including rheumatoid arthritis and #fibromyalgia.

9.Omega 3

Omega 3 fish oils are extracted from the flesh of the oily fish and are widely taken to help maintain healthy joints. They have anti-inflammatory and are helpful for reducing symptoms of arthritis, asthma, rheumatoid arthritis, and psoriasis.

10.Peppermint Oil 

Peppermint is a very popular herb and contains menthol, which has a calming effect and helps to relax the muscles.

11.Rosehip

Rosehip is a popular traditional tonic which was given to children in winter as a sauce of vitamin C during the Second World War. It has a rich source of anti-inflammatory fatty and volatile oils. This is now being used as an effective treatment for painful joints.

12.St. John’s Wart

St John’s Wart is a traditional herbal medicine used to relieve the symptoms of low mood and anxiety,

Holland and Barratt have a ‘Healthbox‘ to support your joint pain. You have a consultation with them to receive personalised vitamins & supplements with helpful advice to ease your joint pain.

They ask you a few easy questions about your lifestyle, nutrition and goals. They will turn your answers into a set of personalised vitamins and advice and you receive a 28-day supply of vitamins as a one-off or every month when you subscribe.

With their Healthbox you don’t just get vitamins – you also get access to Holland & Barrett’s amazing health advice, all tailored to your specific needs.

Please make sure you visit your GP first before taking any vitamins or supplements. Details on my Health Disclosure is available here.

 

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A CLOSE LOOK AT FIBROMYALGIA SYMPTOMS…

A close look at #fibromyalgia symptoms…

There are a large number of symptoms of #fibromyalgia but the main symptoms as listed on the Fibromyalgia Support Network are -It is very important that other possible causes are ruled out. The number of, and severity of the rest of the symptoms, seems to be different for every person. They can also vary from day to day, even minute to minute. You could be walking along limping from a severe pain in your left leg for a few minutes, that slowly wears off, only to have a worse pain in your other leg next time you start walking.

The main symptoms of #fibromyalgia include:

      • Chronic widespread pain without apparent cause
      • Fatigue
      • Sleep Disturbance
      • Cognitive Dysfunction
      • Morning Stiffness
      • Cramping and Muscle Spasms
      • Restless Leg Syndrome
      • Digestive Problems
      • Headaches and Migraines
      • Skin Sensations
      • Balance Problems
      • Sensitivities – to just about everything are common as well. Sensitivities to:
        • Touch – It can feel ‘uncomfortable’ to be touched. Tickling can be completely unbearable.
        • Heat – sweats and feelings of breathlessness
        • Cold – increases in pain and difficulty getting warm
        • Changes in the weather – pain increases
        • Side effects from meds – more susceptible to side effects and side effects can be more severe. Also, a med that works well for one person can make another very ill.
        • Foods – Common foods that people become especially sensitive to include chilli, dairy, gluten and fatty foods.
        • Light – Bright or glary light can be an issue. So can seeing in low light levels.
        • Sound – Loud sound can cause tinnitus. It can also be very difficult to separate sounds, like when talking to someone in a noisy room.
        • Taste – Some tastes can appear stronger than others, and this can vary.
        • Smell – a sense of smell can be diminished, but it can also be more sensitive. Can cause nausea and headaches.
        • … the list goes on and on.

For me personally from this long list of symptoms I suffer mostly with chronic widespread pain, fatigue, sleep disturbance, digestive problems, balance problems and most definitely some of the sensitivities listed above. What do you suffer from most?

The Fibromyalgia Network that has this list is based in Western Australia and was formed in Perth by Dr Kaye Brand, Physiotherapist. Kaye was diagnosed with Fibromyalgia in the mid 90’s, finding no support and little understanding of the challenges facing those with this diagnosis. She studied overseas, including a scholarship to the USA on Advocacy Training for Fibromyalgia sufferers.  In 2007 Kaye founded the Fibromyalgia Support Network WA along with Sian Doughty, the earliest member.  The Network became incorporated in 2011 and was granted a Charitable Collectors License.