Take part to share the facts, and make a difference for all those impacted by Fibromyalgia, #SupportFibro. Fibromyalgia Awareness Day is May 12th. Get ready to turn the month of May purple!
Fibromyalgia has many symptoms that tend to vary from person to person, and the NHS describe some of the awful symptoms.
There may be periods when your symptoms get better or worse, depending on factors such as:
your stress levels
changes in the weather
how physically active you are
If you think you have fibromyalgia, visit your GP.
Treatment is available to ease some of the symptoms, although it’s unlikely they’ll ever disappear completely.
The main symptoms of fibromyalgia are outlined below.
Widespread pain
If you have fibromyalgia, one of the main symptoms is likely to be widespread pain.
This may be felt throughout your body, but could be worse in particular areas, such as your back or neck.
The pain is likely to be continuous, although it may be better or more severe at different times.
The pain could feel like:
an ache
a burning sensation
a sharp, stabbing pain
Extreme sensitivity
Fibromyalgia can make you extremely sensitive to pain all over your body, and you may find that even the slightest touch is painful.
If you hurt yourself, such as stubbing your toe, the pain may continue for much longer than it normally would.
You may hear the condition described in the following medical terms:
hyperalgesia – when you’re extremely sensitive to pain
allodynia – when you feel pain from something that should not be painful at all, such as a very light touch
You may also be sensitive to things like smoke, certain foods and bright lights.
Being exposed to something you’re sensitive to can cause your other fibromyalgia symptoms to flare up.
Stiffness
Fibromyalgia can make you feel stiff. The stiffness may be most severe when you have been in the same position for a long period of time – for example, when you first wake up in the morning.
It can also cause your muscles to spasm, which is when they contract (squeeze) tightly and painfully.
Fatigue
Fibromyalgia can cause extreme tiredness (fatigue). This can range from a mild tired feeling to the exhaustion often experienced during a flu-like illness.
Severe fatigue may come on suddenly and can drain you of all your energy. If this happens, you may feel too tired to do anything at all.
Poor sleep quality
Fibromyalgia can affect your sleep. You may often wake up tired, even when you have had plenty of sleep.
This is because the condition can sometimes prevent you sleeping deeply enough to refresh you properly.
You may hear this described as non-restorative sleep.
Cognitive problems (‘fibro-fog’)
Cognitive problems are issues related to mental processes, such as thinking and learning.
If you have fibromyalgia, you may have:
trouble remembering and learning new things
problems with attention and concentration
slowed or confused speech
Headaches
If fibromyalgia has caused you to experience pain and stiffness in your neck and shoulders, you may also have frequent headaches.
These can vary from being mild headaches to severe migraines, and could also involve other symptoms, such as feeling sick.
In some cases, having the condition can lead to depression.
This is because fibromyalgia can be difficult to deal with, and low levels of certain hormones associated with the condition can make you prone to developing depression.
Depression can cause many symptoms, including:
constantly feeling low
feeling hopeless and helpless
losing interest in the things you usually enjoy
If you think you may be depressed, it’s important to get help from a GP or your fibromyalgia healthcare professional, if you have been seeing one.
Here are some great tips for newly diagnosed Fibromyalgia sufferers from fellow sufferers.
The Fibro Blogger Directory should be your first port of call for anything to do with Fibro. There is a large database of bloggers who all write about Fibro in one way or another and it is an award-winning blog for all the work it’s writer Lee Good does for this condition. It is CONNECTING the fibro blogging community, inspired by all the fibro bloggers and their stories.
WORLD RED CROSS DAY – 8th May – The first Red Cross & Red Crescent Day was held in 1948. This event is supported by the International Red Cross and Red Crescent Movement; a humanitarian movement that aims to protect people’s lives and health, alleviate or prevent suffering and ensure respect is given to all.
Prior to this observance and following the end of the First World War, there had been an initiative known as the ‘Red Cross Truce’. Initially, this was a three-day truce in former Czechoslovakia which took place during Easter time.
The work of the Red Cross also includes first aid, emergency response, health, and social care, preparing for disasters, refugee services and helping people find missing families. During times of war, the Red Cross helps to protect people in armed conflict.
Increased urbanization has made the work of the Red Cross more complex. A greater number of people who now live in urban areas face exposure to hazards, and insecurity and have poor access to services such as food, health care and water.
When a disaster such as a tsunami or an earthquake strikes densely populated urban areas, the consequences can be immense. The urbanization theme helps people recognize the important work the Red Cross is doing in these areas and why people should support this organization.
Whether schools are open or closed, World Red Cross and Red Crescent Day is the perfect opportunity for parents and teachers to talk to their children about the importance of the Red Cross and Red Crescent all over the world.
The 2023 theme is to highlight the universal, human, and diverse aspects of our Movement by focussing on our volunteers and their involvement within our communities.
WORLD ME DAY – 12th May – World ME Day raises awareness about ME, a widespread and debilitating condition. This event promotes a greater understanding of ME and the impact it can have on a person’s life.
This year marks the 55th anniversary since the World Health Organization (WHO) officially acknowledged ME, highlighting the urgency of addressing this global health crisis.
In recent times, the landscape of ME has evolved with COVID-19 triggering a surge in the numbers of individuals affected by ME. Today, we estimate that more than 55 million individuals worldwide are living with the debilitating effects of this condition. Amidst these escalating numbers, member organisations of the World ME Alliance are actively joining forces, amplifying their support for initiatives that seek to address the multifaceted impact of ME on individuals and communities alike.
With your support, we will be a #GlobalVoiceForME.
The idea originated with Thomas Michael Hennessy, Jr., the founder of Repeal Existing Stereotypes about Chronic Immunological and Neurological Diseases (no longer active). Tom Hennessy was based in the USA but understood that it needed to be an international event; he designated May 12 as the International Awareness Day for the spectrum of illnesses he called Chronic Immunological and Neurological Diseases (CIND).
May 12 was chosen as it coincided with the birth date of Florence Nightingale, the celebrated English social reformer and statistician, and the founder of modern nursing. Nightingale became chronically ill in her mid-thirties after returning from the Crimean War; the M.E.-like illness often left her bedridden during the last 50 years of her life. You will find a more detailed account in A Short History of Myalgic Encephalomyelitis.
Tom Hennessy included Myalgic Encephalomyelitis (also known as chronic fatigue syndrome and Chronic Fatigue and Immune Dysfunction Syndrome), Fibromyalgia, Gulf War Syndrome and Multiple Chemical Sensitivity under the CIND umbrella. These illnesses, characterised by cognitive problems, chronic muscle and joint pain, extremely poor stamina, and numerous other symptoms, afflict people around the world in alarming numbers.
May 12 efforts have been low-key and undertaken by individuals or individual organisations. Due to the mandates of these organisations, the awareness efforts have, for the most part, focused on only one of the illnesses. From the beginning of 1993 various M.E. organisations were behind the idea, and it was subsequently highlighted at the First World Congress on Chronic Fatigue Syndrome and Related Disorders in 1995. This was instrumental in the campaign being adopted internationally for Myalgic Encephalomyelitis. The universal symbol of the blue ribbon is worn to spread awareness and support sufferers.
The World ME Alliance, a collaborative of organisations from across the globe, is launching World ME Day on 12th May this year. This new initiative aims to bring together organisations and unify efforts to raise awareness and campaign together on Myalgic Encephalomyelitis.
ACTION ON STROKE MONTH – 1st – 31st May – Throughout May the campaign raised awareness of the damaging effects of the Covid-19 pandemic on stroke research. In previous years, Stroke Awareness Month has been marked with the Make May Purple campaign.
The Stroke Association is here to support people to rebuild their lives after a stroke. They believe everyone deserves to live the best life they can after a stroke. They provide specialist support, fund critical research and campaign to make sure people affected by stroke get the absolute best care and support to rebuild their lives. Rebuilding lives after a stroke is a team effort. It takes the determination of stroke survivors and carers, the generosity of supporters and the dedication of the healthcare and research communities to get there. For more information,click here.
WORLD FIBROMYALGIA AWARENESS DAY – 12th May – Millions of people worldwide will be holding events and participating in other ways to help raise awareness for this invisible and insidious disease during the month of May.
WORLD FIBROMYALGIA AWARENESS MONTH – May – Fibromyalgia Awareness Month forMay 1st-30th – May is the month we all come together to educate and raise awareness about Fibromyalgia with friends and family, at work, and in our neighbourhoods. Take part to share the facts and make a difference for all those impacted by Fibromyalgia, #SupportFibro. Fibromyalgia Awareness Day is May 12th and World Lupus Day is May 10th. Get ready to turn the month of May purple!
Help to promote World Fibromyalgia Awareness Day on 12th May 2022 in any way you can. Some Fibro groups have created unique ways to help promote awareness. Throughout the month of May of each year, people worldwide spread awareness of fibromyalgia and other chronic pain conditions through live events, online activities, and personal efforts.
NATIONAL OSTEOPOROSIS MONTH – 1ST – 31st – Each May, the Bone Health & Osteoporosis Foundation (BHOF) works to generate awareness and inspire behavioural change regarding the critical importance of good bone health and osteoporosis prevention. Osteoporosis is common. One in two women and up to one in four men over the age of 50 will break a bone due to osteoporosis. The disease, which is not a normal part of ageing, is serious causing broken bones, pain, suffering and life-altering loss of mobility — yet it is treatable and even preventable.
During May and all year long, they want everyone to make a commitment to be bone strong! Here are some of the many ways that you can get involved: Share your story: Raise awareness about osteoporosis by telling others about your experiences. Sharing your journey will help others understand the impact of this disease and gain an understanding of what it’s like for someone who has it. Visit our blog, Bone Talk, to get inspiration from our Voices of Osteoporosis stories. If you’d like to be featured, click here.
Join the online community: BHOF’s Osteoporosis Online Support Community, hosted by Inspire, brings people with, and affected by osteoporosis together online to share experiences and provide support for one another. Now with more than 68,000 members, this community is a reliable source of support and a channel for learning more about living with the disease. Learn more and join today!
Post on social media: Spread the word among your network by using this toolkitcomplete with graphics and suggested posts. We’ve made it easy for you to raise awareness and get others involved in taking steps to #BeBoneStrong!
Start a fundraiser: Visit the BHOF fundraising page to learn more and register with Crowdrise. You can then personalize your fundraiser with stories, photos, and videos. It only takes a few minutes. Then invite your friends, family, and network to support your fundraiser. You can even donate to yourself to get the ball rolling.
Contribute: Give during the month of May to help improve patient care and support for those who have already broken bones due to osteoporosis and to protect future generations from this debilitating disease. Donate today!
DEAF AWARENESS WEEK – 6-12 thMay – Deaf Awareness Week is an annual event. The focus of the week was to raise awareness of deafness and hearing loss. It aimed to celebrate exceptional individuals and showcase what you can do to champion inclusivity and be more deaf-friendly.
Check out some of our deaf awareness videos and hear from colleagues across the National Deaf Children’s Society and deaf young people themselves.
There was so much that happened that week, including many online events:
the ‘terrible twos’ (and ones and threes!) online coffee mornings
Early Education online sessions
Overcoming Sleep Issues for Deaf Children with a resident sleep specialist, Nicola Corazzo
to help and support deaf children, young people, and their families!
WORLD LUPUS DAY – 10th May – This year for World Lupus Day they want to Make Lupus Visible using the power of social media to show the world the many faces of lupus and the impact of this debilitating autoimmune disease.
The World Lupus Day annual observance brings together lupus organizations and people impacted by the disease from around the world to urge the public to understand lupus and spread awareness.
World Lupus Day – 10 May Lupus is a global health problem that affects people of all nationalities, races, ethnicities, genders and ages. Lupus can affect any part of the body in any way at any time, often with unpredictable and lifechanging results. Important Facts to Know about Lupus:
Lupus is a serious and potentially life-threatening autoimmune disease.
Lupus can damage any organ or tissue from the skin or joints to the heart or kidneys.
Lupus develops in response to factors both inside and outside of the body; however, the exact cause of lupus is not known.
Symptoms of lupus come and go, change over time, making lupus challenging to diagnose. Common symptoms include joint pain, skin rashes, overwhelming fatigue, and fevers that last for days or weeks.
Lupus is not contagious. You cannot ‘catch’ lupus from someone else.
While there is no cure for lupus, in most cases lupus can be managed successfully through early diagnosis and expert medical care. Who has lupus?
An estimated 5 million people worldwide have lupus.
Lupus can strike anyone at any time, but 90 percent of the people living with lupus are women.
Lupus develops most often between ages 15 and 44 and lasts a lifetime.
People of all races and ethnic groups can develop lupus. About World Lupus Day Since 2004 and led by the World Lupus Federation, lupus organizations around the globe have conducted activities on May 10 to raise awareness and educate the public about the symptoms and health effects of lupus. Raise Awareness of Lupus on Social Media This year for World Lupus Day on May 10, 2024 the global lupus community will come together for a day of action that will consist of several activities designed to “Make Lupus Visible” so that the world can learn more about this debilitating disease and join us in the fight against lupus. Learn more about lupus and how to get involved to Make Lupus Visible this year for World Lupus Day at worldlupusday.org About the World Lupus Federation The World Lupus Federation (WLF) is a coalition of lupus patient organizations, united to improve the quality of life for all people affected by lupus. Through coordinated efforts among its affiliates, the Federation works to expand global initiatives that create greater awareness and understanding of lupus, provide education and services to people living with the disease and advocate on their behalf.
They are currently finalizing lupus awareness tools, shareable images and sample messaging you can use to help Make Lupus Visible onWorld Lupus Day and will share all of this with you soon.
In 2023, the theme of International Nurses Day has been set by the ICN as ‘Nurses: A Voice to Lead – Invest in Nursing and respect rights to secure global health.’ You can learn more about International Nurses Day 2023 and other ICN events by visiting their website here.
MENTAL HEALTH WEEK – 13th- 19th May – on the theme of “Movement: Moving more for our mental health”.
Being active is important for our mental health. But so many of us struggle to get enough exercise. We know there are many different reasons for this, so this Mental Health Awareness Week we want to help people to find moments for movement in their daily routines. Going for a walk in your neighbourhood, putting on your favourite music and dancing around the living room, chair exercises when you’re watching television – it all counts!
In the coming weeks, we’ll be sharing more information on how you, your school, or your organisation can get involved in this year’s Mental Health Awareness Week.
WORLD MS AWARENESS DAY – 30th May – World MS Day is the MS movement’s annual campaign to raise awareness of the condition, and to support and connect the 2.8 million people living with it worldwide. It is a day to celebrate global solidarity and hope for the future.
In 2009, MSIF and our members initiated the first World MS Day. Together we have reached hundreds of thousands of people around the world, with a campaign focusing on a different theme each year.
World MS Day is officially marked on 30 May. Events and campaigns take place throughout the month of May. It brings the global MS community together to share stories, raise awareness and campaign with and for everyone affected by multiple sclerosis.
The theme for World MS Day 2024-2025 is diagnosis. The name of the campaign is My MS Diagnosis and the tagline: navigating MS together.
The My MS Diagnosis campaign advocates for early and accurate diagnosis for everyone living with MS. It highlights the global barriers to diagnosing MS, raising awareness by sharing real stories and data. We are calling for better MS training for healthcare professionals, new research, and clinical advancements in MS diagnosis. Together we are building informed, caring communities and systems that support people diagnosed with MS.
It has been proven to help your mind body and soul to have a quiet space to read in and the smallest of corners in a quiet area of your home could easily be changed into a reading Seat.
While I have been recovering from pneuonia I have done a lot of reading and found one chair in particular to be my absolute favourite to sit and get comfy and read. For people in pain there are a number of things you need to think about.
Firstly, is your chair comfortable enough that you can sit at it for a while without discomfort? Secondly, is there anywhere you can rest your feet (foot stool or reclyiner) as sitting cross legged for a length of time can cause havoc on your back. Thirdly how are you going to hold your book/kindle or phone to read your story? And, finally is the light good enough for reading?
My favourite chair is in my dining kitchen which faces the back garden where I can see my Robins and Blue Tits enjoyed the feast I have left them. I have a light behind me which I can switch on if its a dull day and I have a collapsable foot stool under the chair I can pull out to put my feet up. My chair has arms to it as I feel more comfortable resting my arms and I have a number of cushions around me with one to rest my book on top of small bean bag. This makes it perfect for me to just sit and read without causing me any pain.
This Bean Lazy iPad, eReader & Book Mini Bean Bag Fits All tablets and eReaders is the type of thing I mean. I may earn commission from this item should you purchase one. It is available from Amazon and is £14.99
I have searched the internet for some ideas on cosy corners for a reading area as this might inspire you to sort one out for yourself. You can only benefit from reading.
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